Omic data aggregation with data quality valuation

Abstract

A system and method are disclosed for the collection and aggregation of genomic, medical, and other data of interest for individuals and populations that may be of interest for analysis, research, pharmaceutical development, medical treatment, and so forth. Contributors become members of a community upon creation of an account and providing of data or files. The data is received and processed, such as to analyze, structure, perform quality control, and curate the data. Value or shares in one or more community databases are computed and attributed to each contributing member. The data is controlled to avoid identification or personalization. Third parties interested in the database information may contribute value (e.g., pay) for access and use. Value flows back to the members and to a system administrative entity.

1 .- 34 . (canceled) 
     
     
         35 . A system comprising:
 a server that, in operation, serves interface pages to contributing members of an aggregation community for receipt of member-specific account data and member-specific contributed data, the member-specific contributed data comprising omic and/or phenotype data submitted by each contributing member or data derived therefrom;   a database that, in operation, stores and aggregates the member-specific contributed data with member-specific contributed data contributed by other contributing members; and   processing circuitry that, in operation, processes the received and stored member-specific contributed data and performs a quality evaluation comprising an evaluation of reliability or credibility of a contributing member and/or evaluation of quality of data submitted by the contributing member;   wherein the processing circuitry is configured to attribute a member-specific value to a member-specific account for each contributing member based upon member-specific contributed data of the respective contributing member, and wherein the member-specific value is at least partially based upon the quality evaluation.   
     
     
         36 . The system of  claim 35 , wherein the processing circuitry attributes the member-specific value based upon a pre-established calculation applied to all contributing members and taking into account the quality evaluation of the member-specific contributed data for each contributing member. 
     
     
         37 . The system of  claim 35 , wherein the processing circuitry transfers an asset amount to each member-specific account as consideration for member-specific contributed data of the respective contributing member, the asset amount being based at least partially on the quality evaluation of the member-specific contributed data for the respective contributing member. 
     
     
         38 . The system of  claim 35 , wherein the operations in the quality evaluation of the received and stored member-specific contributed data follow a blockchain or distributed ledger protocol. 
     
     
         39 . The system of  claim 38 , wherein the blockchain or distributed ledger protocol comprises ledger entries for results of operations in the quality evaluation of the received and stored member-specific contributed data. 
     
     
         40 . The system of  claim 35 , wherein the quality evaluation is performed on structured data or files derived from the received and stored member-specific contributed data. 
     
     
         41 . The system of  claim 35 , wherein the quality evaluation comprises analyzing the received and stored member-specific contributed data for redundancy with member-specific contributed data already provided by a contributing member. 
     
     
         42 . The system of  claim 35 , wherein the quality evaluation comprises analyzing the received and stored member-specific contributed data for inconsistency with member-specific contributed data already provided by a contributing member. 
     
     
         43 . The system of  claim 35 , wherein the quality evaluation comprises analyzing the received and stored member-specific contributed data by comparison of the data with reference data. 
     
     
         44 . The system of  claim 35 , wherein the contributor evaluation comprises evaluation of past data submissions by the respective contributing member or evaluation of a third party source of the member-specific contributed data. 
     
     
         45 . The system of  claim 35 , wherein the database is maintained by an administrative entity that allows analysis of the aggregated member-specific contributed data by third parties, and wherein the administrative entity does not link member-specific contributed data to an associated member-specific account in a manner that would personally identify the respective contributing member to the third parties without permission of the respective contributing member, and wherein a value is attributed to the member-specific account data based upon access by the third parties to the member-specific contributed data. 
     
     
         46 . A system comprising:
 a server that, in operation, serves interface pages to contributing members of an aggregation community for receipt of member-specific account data and member-specific contributed data, the member-specific contributed data comprising omic and/or phenotype data submitted by each contributing member or data derived therefrom;   a database that, in operation, stores and aggregates the member-specific contributed data with member-specific contributed data contributed by other contributing members; and   processing circuitry that, in operation, processes the received and stored member-specific contributed data and performs a quality evaluation comprising an evaluation of reliability or credibility of a contributing member and/or evaluation of quality of data submitted by the contributing member;   wherein the processing circuitry is configured to attribute a member-specific value to a member-specific account for each contributing member based upon member-specific contributed data of the respective contributing member, and wherein the member-specific value is at least partially based upon the quality evaluation, and upon utilization of the member-specific contributed data by a third party.   
     
     
         47 . The system of  claim 46 , wherein the operations in the quality evaluation of the received and stored member-specific contributed data follow a blockchain or distributed ledger protocol. 
     
     
         48 . The system of  claim 47 , wherein the blockchain or distributed ledger protocol comprises ledger entries for results of operations in the quality evaluation of the received and stored member-specific contributed data. 
     
     
         49 . A system comprising:
 a server that, in operation, serves interface pages to contributing members of an aggregation community for receipt of member-specific account data and member-specific contributed data, the member-specific contributed data comprising omic and/or phenotype data submitted by each contributing member or data derived therefrom;   a database that, in operation, stores and aggregates the member-specific contributed data with member-specific contributed data contributed by other contributing members; and   processing circuitry that, in operation, processes the received and stored member-specific contributed data and performs a quality evaluation comprising an evaluation of reliability or credibility of a contributing member and/or evaluation of quality of data submitted by the contributing member;   wherein the processing circuitry is configured to attribute a member-specific value to a member-specific account for each contributing member based upon member-specific contributed data of the respective contributing member, and wherein the member-specific value is at least partially based upon the quality evaluation; and   wherein the database is maintained by an administrative entity that allows analysis of the aggregated member-specific contributed data by third parties, and wherein the administrative entity does not link member-specific contributed data to an associated member-specific account in a manner that would personally identify the respective contributing member to the third parties without permission of the respective contributing member.   
     
     
         50 . The system of  claim 49 , wherein the member-specific value is at least partially based upon utilization of the member-specific contributed data to third party. 
     
     
         51 . The system of  claim 49 , wherein the processing circuitry attributes the member-specific value based upon a pre-established calculation applied to all contributing members and taking into account the quality evaluation of the member-specific contributed data for each contributing member. 
     
     
         53 . The system of  claim 49 , wherein the operations in the quality evaluation of the received and stored member-specific contributed data follow a blockchain or distributed ledger protocol. 
     
     
         54 . The system of  claim 53 , wherein the blockchain or distributed ledger protocol comprises ledger entries for results of operations in the quality evaluation of the received and stored member-specific contributed data.