Patient state representation architectures and uses thereof

Abstract

Using a centralized system, it is possible to allow multiple disparate health care providers to gain a complete view of data regarding a patient's health and health care. Data accessible through such a central system can also be made available for researchers after being de-identified. Data in such a central system can not only include data culled from traditional physical and electronic medical records, but can also include data from distributed diagnostic devices, such as fitness trackers and consumer diagnostic equipment. Such a central system could potentially be accessed through applications made available to patients and health care providers and, in implementations where they are present, such applications could also be used for other purposes, such as performing interactive health evaluations and making recommendations of actions to take to maintain or restore a user's health.

1 .- 18 . (canceled) 
     
     
         19 . A machine comprising:
 a) a means for gathering health information for, and providing trial and health information to, a patient;   b) a means for providing patient information to, allowing patient information to be updated by, and plan creation and assignment by, a physician;   c) a means for enabling enrollment of patients in trials and providing details on trial and trial volunteer status; and   d) a means for automatically identifying patients as potential participants in trials.   
     
     
         20 . A system for presenting and allowing modification of health data regarding patients, the system comprising instructions stored on a non-transitory computer readable medium and operable to configure a computer to, when instructed, cause an outcomes chart for a selected patient to be presented to a user, wherein the outcomes chart displays outcomes data for the selected patient and events which have occurred for the selected patient based on data for the selected patient available to the system. 
     
     
         21 . The system of  claim 20 , wherein the events which the outcomes chart would display for the selected patient comprise one or more of the following types of events:
 a) hospitalization events;   b) SST session performance events; and   c) physician intervention events.   
     
     
         22 . The system of  claim 21 , wherein events displayed in the outcomes chart are displayed as vertical lines with pictorial event type indications at their tops or bottoms. 
     
     
         23 . The system of  claim 22 , wherein the outcomes chart is operable by the user to interactively provide additional event information by:
 a) when the user selects a pictorial event type indication for a SST session performance event, providing the user with:
 i) questions asked during the SST session; 
 ii) answers given during the SST session; and 
 iii) final recommendations provided for the SST session; 
   b) when the user selects a pictorial event type indication for a hospitalization event, providing the user with:
 i) an identification of the hospital where the selected patient was admitted; and 
 ii) a date the selected patient was admitted to the hospital; and 
   c) when the user selects a pictorial event type indication for a physician intervention event, providing the user with:
 i) the name of the physician who performed the physician intervention; 
 ii) the date on which the physician intervention was performed; and 
 iii) actions by the physician who performed the physician intervention. 
   
     
     
         24 . The system of  claim 23 , wherein the outcomes chart is presented with a timescale operable by the user to specify time periods which should be used as limits for the outcomes data and events displayed on the outcomes chart. 
     
     
         25 . The system of  claim 24 , wherein:
 a) the system is adapted to associate outcomes data with conditions;   b) the outcomes chart is presented with a legend operable by the user to specify display parameters comprising:
 i) conditions for which outcomes data should be displayed; and 
 ii) types of outcomes data which should be displayed. 
   
     
     
         26 . The system of  claim 25 , wherein:
 a) the legend identifies a plurality of conditions for which outcomes data could potentially be displayed in the outcomes chart;   b) each condition identified in the legend is associated with a different color; and   c) for each condition identified in the legend, information regarding each type of outcomes data associated with that condition is displayed on the outcomes chart in a different shade of the color associated with that condition.   
     
     
         27 . The system of any of  claim 26 , wherein for each type of outcomes data displayed in the outcomes chart for the selected patient:
 a) the outcomes chart displays a corresponding axis indicating a scale at which information for that type of outcomes data is displayed, wherein the corresponding axis is displayed in the same color and shade as the information regarding the type of outcomes data to which it corresponds.   
     
     
         28 . The system of  claim 27 , wherein:
 a) the system is adapted to maintain information indicating whether a particular item of outcomes data was provided by a patient or a physician;   b) the outcomes chart is adapted to allow the user to view physician entered outcomes data separately from patient entered outcomes data; and   c) axes corresponding to physician entered outcomes data are displayed on the opposite side of the outcomes chart from axes corresponding to patient entered outcomes data.   
     
     
         29 . The system of  claim 28 , wherein the outcomes chart displays the outcomes data for the selected patient:
 a) for one or more types of outcomes data provided by the selected patient, using continuous lines displayed on the outcomes chart for those types of outcome data; and   b) for one or more types of outcomes data comprising measurements indicating outcomes on a predetermined scale, displaying those types of outcomes data as a horizontal bar for each measurement with an indication on the bar reflecting the measurement's location on the predetermined scale.   
     
     
         30 . The system of  claim 29 , wherein the outcomes chart is operable by the user to interactively provide additional outcome data information by displaying a popup when the user:
 a) mouses over a continuous line used to display a type of outcomes data within a predetermined distance of a coordinate corresponding to a measurement of the type of outcomes data displayed using that continuous line; or   b) mouses over an indication on a horizontal bar of the location on a predetermined scale of the measurement corresponding to that horizontal bar.   
     
     
         31 . The system of  claim 30 , wherein the outcomes chart is continuously updated with new outcomes data and events so that it provides a real time reflection of the latest data for the selected patient. 
     
     
         32 . The system of  claim 31 , wherein the outcomes chart is displayed as part of a patient profile for the selected patient. 
     
     
         33 . The system of  claim 32 , wherein:
 a) the patient profile for the selected patient is presented as part of a portal for a research coordinator for a pharmaceutical research trial; and   b) patient profile comprises, in addition to the outcomes chart, a status indicator indicating the progress of the selected patient in enrollment for the pharmaceutical research trial.   
     
     
         34 . The system of  claim 32 , wherein:
 a) the patient profile for the selected patient is presented as part of a portal for a physician providing health care for the selected patient as a health care provider; and   b) the patient profile is operable by the physician providing health care for the selected patient to submit health information for the selected patient to be stored and made accessible by the system.