Community data aggregation with automated followup

Abstract

A system and method are disclosed for the collection and aggregation of data from contributing members of a community, such as health-related, personal, genomic, medical, and other data of interest for individuals and populations. Contributors become members of a community upon creation of an account and providing of data or files. The data is received and processed, such as to analyze, structure, perform quality control, and curate the data. Value or shares in one or more community databases are computed and attributed to each contributing member. The data is controlled to avoid identification or personalization. Steps are taken to determine incompleteness and incorrectness of the data, and the data may be improved or completed automatically, based upon interaction with members, additional contributions of data, and so forth.

1 . A system comprising:
 a database maintained by an administrative entity that, in operation, stores and aggregates member-specific contributed data transmitted by contributing members with member-specific contributed data contributed by other contributing members, wherein the database comprises an immutable and/or cryptographically encoded ledger and/or a blockchain; and   processing circuitry maintained by the administrative entity that, in operation, executes stored instructions to process member-specific account data received from the contributing members via interface pages to establish member-specific accounts based on the member-specific account data, and attributes a member-specific value to the member-specific accounts based upon respective member-specific contributed data;   wherein the processing circuitry analyzes the member-specific contributed data for each contributing member to determine missing or incorrect data, and sends an automated de-identified communication to the respective contributing member by the administrative entity to provide missing data or to correct incorrect data, and wherein an identity of the respective contributing member to whom the automated de-identified communication is sent is not available to the administrative entity originating the automated de-identified communication.   
     
     
         2 . The system of  claim 1 , wherein the processing circuitry determines a quality score based upon a completeness and/or correctness of the member-specific contributed data. 
     
     
         3 . The system of  claim 2 , wherein the processing circuitry is configured to alter the quality score based upon later contributed data. 
     
     
         4 . The system of  claim 2 , wherein the member-specific value is based at least partially upon the quality score. 
     
     
         5 . The system of  claim 1 , wherein the processing circuitry automatically and without human intervention attempts to complete missing data and/or to correct incorrect data prior to communicating with the respective contributing member. 
     
     
         6 . The system of  claim 1 , wherein the database is configured to store member-specific contributed data of different types, and the processing circuitry determines missing or incorrect data of one type based upon analysis of data of a different type. 
     
     
         7 . The system of  claim 6 , wherein the types of member-specific contributed data comprise at least two of omic data, phenotype data, health data, personal data, familial data and environmental data. 
     
     
         8 . The system of  claim 1 , wherein the database is configured to store member-specific contributed data of different types, and the processing circuitry determines missing or incorrect data of one type based upon analysis of the same type of data but contributed at different times by the same contributing member. 
     
     
         9 . The system of  claim 1 , wherein the missing or incorrect data is determined based upon analysis of aggregated data of a plurality of contributing members. 
     
     
         10 . The system of  claim 1 , wherein the missing or incorrect data comprises at least two of personal data, medical record data, dietary data and wearable device data. 
     
     
         11 . The system of  claim 1 , wherein the automated de-identified communication comprises a customized survey based upon data determined to be missing and/or incorrect. 
     
     
         12 . The system of  claim 1 , wherein the automated de-identified communication comprises a recommendation for acquisition of additional data by the respective contributing member. 
     
     
         13 . The system of  claim 1 , wherein the processing circuitry transfers an asset amount to each member-specific account based upon the member-specific value. 
     
     
         14 . The system of  claim 1 , wherein the member-specific value is attributed as a currency and/or a cryptocurrency and/or an ownership share in the database or database maintaining entity. 
     
     
         15 . The system of  claim 1 , wherein the processing circuitry is configured to make ledger entries in an immutable and/or cryptographically encoded ledger and/or a blockchain based upon interaction with the contributing members. 
     
     
         16 . A system comprising:
 a database maintained by an administrative entity that, in operation, stores and aggregates member-specific contributed data transmitted by contributing members with member-specific contributed data contributed by other contributing members, wherein the database comprises an immutable and/or cryptographically encoded ledger and/or a blockchain; and   processing circuitry maintained by the administrative entity that, in operation, executes stored instructions to process member-specific account data received from the contributing members via interface pages to establish member-specific accounts based on the member-specific account data, and attributes a member-specific value to the member-specific accounts based upon respective member-specific contributed data;   wherein the processing circuitry analyzes the member-specific contributed data for each contributing member to determine missing or incorrect data based upon analysis of the same type of data but contributed at different times by the same contributing member or based upon analysis of data of a different type, and sends an automated de-identified communication to the respective contributing member to provide missing data or to correct incorrect data; and wherein an identity of the respective contributing member to whom the automated de-identified communication is sent is not available to the administrative entity originating the automated de-identified communication.   
     
     
         17 . The system of  claim 16 , wherein the automated de-identified communication comprises a customized survey based upon data determined to be missing and/or incorrect. 
     
     
         18 . The system of  claim 16 , wherein the automated de-identified communication comprises a recommendation for acquisition of additional data by the respective contributing member. 
     
     
         19 . A system comprising:
 a database maintained by an administrative entity that, in operation, stores and aggregates member-specific contributed data transmitted by contributing members with member-specific contributed data contributed by other contributing members, wherein the database comprises an immutable and/or cryptographically encoded ledger and/or a blockchain; and   processing circuitry maintained by the administrative entity that, in operation, executes stored instructions to process member-specific account data received from the contributing members via interface pages to establish member-specific accounts based on the member-specific account data, and attributes a member-specific value to the member-specific accounts based upon respective member-specific contributed data;   wherein the processing circuitry analyzes the member-specific contributed data for a contributing member to determine missing or incorrect data, and sends a customized survey via an automated de-identified communication to the respective contributing member based upon data determined to be missing and/or incorrect; and wherein an identity of the respective contributing member to whom the automated de-identified communication is sent is not available to the administrative entity originating the automated de-identified communication.   
     
     
         20 . The system of  claim 19 , wherein the processing circuitry sends a recommendation for acquisition of additional data by the contributing member.